Laura Santurri's ICA Fundraising Page
As many of you may know, I have lived with a chronic condition, interstitial cystitis (IC), for almost twenty years now. I do not speak about it much, as I do not generally put it front and center in my life, but there is no denying that it affects me most days. You can learn more about it at https://www.ichelp.org/about-ic/what-is-interstitial-cystitis/, but what we (think) we know about it is that it is a bladder condition characterized by symptoms of a urinary tract infection (but no infection; we actually do not know what causes it). Yes, it is living every day with urinary urgency, frequency, and, pain. Not honestly something that I like to chat about on a regular basis.
For the first decade or so of living with this condition, I let it wreck me. I loved and lost (in part) because of it. The daily pain and consequences of that pain made me believe that I was “damaged goods.” And then one day I found a treatment that worked – I had a Medtronic device implanted in my spine to control the pain, and overnight my whole life changed. And as soon as I healed from my surgery, I started running with my dad (it is not an overstatement to say that it felt like he saved my life when he convinced me to do this). One foot in front of the other, I went from an obese smoker who could barely walk a mile to my first ten-mile race (the Medtronic TC 10) to my first half marathon to my first marathon. One foot in front of the other – it is a motto that guides me every day in almost all that I do.
On October 1, 2017, I will run my fourth marathon, and I am coming full circle, as it is the Medtronic TC Marathon. Just less than one month after that, I will run my first ultra marathon – the Chicago Lakefront 50/50 (the 50K, not the 50 mile – I am not crazy…yet).
One foot in front of the other. As I reflect on how far I have come, I would like to raise some funds for an organization that played a role in helping me find an accurate diagnosis and provided support that I literally could not find anywhere else – the Interstitial Cystitis Association. If you are able to donate, it is very much appreciated. And if you cannot, take a moment to learn about IC and the ICA. The estimates range based on the study, but it is thought that upwards of 12 million people live with this condition in the U.S. Many of us live with it silently, but when we do tell someone, it makes a world of difference when we are met with understanding and kindness.
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