Walk for an IC Cure!
Did you know that there are more than 12 million people in the US who suffer with interstitial cystitis/bladder pain syndrome (IC/BPS)? IC/BPS is recurring pelvic pain, pressure, or discomfort in the bladder and pelvic region, often associated with urinary frequency (needing to go often) and urgency (feeling a strong need to go).
About five years ago I was told the news I had IC and incurable and at times sometimes daily debilitating disease. The words of another IC sufferer that seems fitting is "IC is not a death sentence but a life sentence" that really sums it up. I was fine had no bladder issues at all... went in for steroid shots in my lower back to try to get rid of sciatic pain and three days later I couldnt control my bladder and had to run to try to make it. Peed my pants at Disneyland in front of my niece. Forward two days after that and the most excruiating pain came like I was being torn apart "split up the middle!" The pain didnt stop and got to the point I had to go to the ER. I consulted my OB/GYN after docs guessed it coudl be fibroids. Paid $500 to have them do a scope and nothing. Dr reasurred me I would feel better after I woke from the procedure but NO I was worse. Pain so intense many times I thought I woudl black out. And to put my pain level into perspective Ive had kidney issues and had one ureter blocked that created intense stabbing pain in the lower back. So Im no stranger to pain. Let me go on after 6 trips to ER even consulting OBGYN I had an ER doc tell me get a second opinion. So after 3 months of no relief I was thankful to step out of the thinking that the current obgyn was going to help me. I get to another OBGYN and he does an exam tells me I think I kow what is wrong but it takes a Urologist to make the diagnosis. Saw the same Uro that had done my ureter repair surgery. Scheduled a cystocopy and there was the proof of the ulcers in the bladder. NOT A PRETTY SIGHT! I am one of the lucky ones that has access to good health care in a major city and this took 6 months of my life. Sitting of my life sitting on the toilet crying at work conferences and all the while not sharing the pain with anyone. and THEN I BROKE I confided with professionals in my area and joined IC support groups and foudn my people and the only people that truly understand how IC affects one life and the prople around them. Forward five years today I am 95% well through education and sharing with IC supporters online and in my community.
ICA relies entirely on donations.The ICA is the only nonprofit charitable organization dedicated solely to improving the quality of healthcare and lives of people living with interstitial cystitis (IC). Your contribution is greatly appreciated.Thank you for supporting ICA!
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